Who ever would have thought we'd say it? "WE LOVE BOTOX!" It turns out Botox isn't just for beauty pageants; it also works well for treating people with cerebral palsy by numbing the spastic muscles. Gabe got four injections in his adductor muscles (inner thighs). He'll have to reapeat the injections every 3-6 months. Botox prevents his legs from being so tightly scissored together that his hips eventually pull out of joint. We have always been skeptical of long-term medications, but we are learning to be grateful for them when they really work. Gabe's medications have made an amazing difference in his comfort level and happiness. He is working hard at gaining head control. We are so grateful his new shunt is working the way it should!
I am just amazed at the large team of people who are helping this little guy: rehab doctor, neurosurgeon, physical therapists, occupational therapists, speech therapist, vision therapist, developmental specialist, not to mention friends and family! That's a lot of love pound for pound!
What great news! And what a GREAT photo of dad!
ReplyDeleteWe are so glad that this shunt is working!! Yay! What cute boys, I sure hope we can see them soon!
ReplyDeleteI found your blog while searching for info on ivh iv and pvl. I have a preemie still in the nicu and shes been diagnosed w/ ivh 3and 4, hydocephalus, and pvl. She was born at 29 wks and was septic. Reading your story gives me much needed hope. :)
ReplyDeletePlease feel free to email me anytime (see profile). Take it one day at a time and stay focused on all the blessings in your life and in your sweet little Isabella's life. I wish you the best.
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